Laura's blog

Checking for Clots

The nurses check his blood flow with a doppler three times a day. This gives them an idea of how the clots are doing.

Fighting many fronts

A few hours before Ezra went into transplant surgery his left leg began to change color from its usual gray color to a darker and bluer shade. His PICC line, was inserted into that leg, and when it was tested, it was not fully functional, confirming the presence of a clot. Ezra was put on IV anticoagulants to treat it. 

Day 13 Post Surgery

This week, on day 13 post surgery Ezra was discharged from the cardiac ICU to the recovery floor. The surgical recovery floor nurses have more patients, and parents are more hands-on with care. We are preparing for final discharge. This phase is more casual and we have the new privilege of taking him off his monitors and walking around the hospital with him, almost like a normal baby! We like to take him to the rooftop garden. It has sweeping views of the mountains and space needle. He loved the sun and breeze on his face. It feels good to be going downhill away from the transplant rather than slogging uphill toward it.

Checking everyone....

When Ezra was diagnosed, before he was born, we asked one of the cardiologists if he felt it would be prudent to get our other children checked for congenital heart defects, but he didn't feel it was necessary.

10 Days Post Transplant

10 days since transplant. Eating every daytime feed with a bottle at maximum onces. Main incision completely healed. It will be 4 more weeks until sternum heals


Chicks dig scars

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