Loving Ezzy's Big Heart

       

With the cost of a transplant often exceeding $500,000, many transplant families are unable to shoulder the financial burden of such a procedure. The Children’s Organ Transplant Association (COTA) is a national charity dedicated to organizing and guiding communities in raising funds for transplant-related expenses. In Bothell, volunteers are raising funds for COTA in honor of transplant patients like local infant, Ezra Koenig.

Ezra was born in 2016, Ezra was diagnosed with Dilated Cardiomyopathy. Unfortunately this heart defect was inoperable for little Ezzy. By the middle of the summer his heart function had worsened and he was admitted to Seattle Children’s again. After several days he was moved to the cardiac ICU for increased life support and listed for transplant. On August 23rd, the call came and Ezra’s life was saved. The doctors at Seattle Children’s Hospital in Washington performed a life-saving heart transplant  because of a donor families selfless decision.  A month later, after a total of 94 days in the hospital, Ezra (and a pharmacy’s worth of medicine – 42 doses per day at first) came home. He faces a lifetime of daily medication to control rejection, specialist therapies, annual biopsies, regular clinic visits, inpatient stays for childhood illness, and eventually another heart transplant. After 15 or 20 years, his new heart will begin to fail as a result of the effects of rejection; transplanted hearts don’t last forever. Our smiley little boy has an uphill road ahead. Thank you for being one of the many people to help him along the way.

 An estimated $100,000 is being raised by Bothell volunteers. 

So far Ezra has been readmitted to the hospital every month for 2017 for various surgeries and illinesses.

You can follow his story on FB  
https://www.facebook.com/Loving-Ezzys-Big-Heart-1880960002131629/

#LovingEzzy

 

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Donation boxes are ready! Let us know if your church, business or booth is willing to display one!